(@ssa100)

Social Security

Relationships with Service Organizations

Describe the ideal relationship for youth and their families with the school, provider agencies, and other support systems that builds a culture of work and financial independence for youth with disabilities. How young should the kids be when the system starts coordinating? How can we better idnetify kids receiving benefits so they receive appropriate supports?

Voting

25 votes
25 up votes
0 down votes
Active
(@ilka.riddle)

Education

Health as Transition Topic on IEP

Many youth with disabilities also face health issues/chronic health conditions. Health care transition from the pediatric to the adult health care system is often not addressed with youth and their families. Addressing health, health care transition and health care self-management as part of the transition IEP would be very helpful for youth with health issues. Only someone who is healthy/can manage his/her health condition... View full idea »

Voting

90 votes
90 up votes
0 down votes
Active
(@icyis01)

Social Security

Ability to Save for a Child

As a parent, the responsible thing to do for my daughter is to save money in a college fund for her. However, because she is a minor, the account should legally be in my name. According to current SSI and Medicaid guidelines, I cannot have more than $1500 between my checking and savings account so it is impossible for me to save money for her. Of course, I know there are ways around this but it should not be difficult... View full idea »

Voting

56 votes
57 up votes
1 down votes
Active
(@lynntg)

Education

College Level Services

Yes, many of our kids DO go to college and are successful in that environment. But it's not because they've been provided any services. Most universities and post-secondary education is SERIOUSLY lacking in the services departments. Any post-secondary institution that accepts government money of any kind needs to have available services for all, not just hard copies of notes and extended test time for those with learning... View full idea »

Voting

73 votes
74 up votes
1 down votes
Active
(@smjones)

Employment

Flexible Community Supports

There needs to be more support for providers that are wanting to provide more community based employment supports for people with disabilities. It is difficult to transition from a traditional, facility-based model under current funding structures. Transportation and support needs to be flexible and responsive to people's real needs and real outcomes.

Voting

67 votes
68 up votes
1 down votes
Active
(@angie4dolls)

Education

Community College Post Secondary Programs

Community Colleges need to expand and develope two year programs for students with disabilities that focus on a skill based cirriculum: life skills for independent living, job preparation, and include options for training for specific types of jobs. Many post secondary programs are expensive. Community colleges allow for affordable programs and greater accessiblity. It also provides youth with a college experience.

Voting

107 votes
109 up votes
2 down votes
Active
(@zmayer)

Employment

Incentives for businesses to employ individuals w/ disabilities

There are tremendous programs and ideas out there to help serve the special needs community. Companies who employ individuals with special needs should be rewarded for their mission. Employment rates amongst youth with ASD are low and opportunities are minimal. http://pediatrics.aappublications.org/content/early/2012/05/09/peds.2011-2864 If companies and programs had tax and monetary incentives to employ those... View full idea »

Voting

61 votes
65 up votes
4 down votes
Active
(@gladiany)

Employment

Need for policy changes

As a 25-year-old Hispanic woman with Spinal Muscular Atrophy I can tell you I am grateful that I have been blessed with lots of opportunities to participate in higher education, to the point of reaching a Master’s degree last month, but I can also say that this success is only small step into what is to come. To be honest, I am not sure what is to come. I have seen first hand that there are major roadblocks I will have... View full idea »

Voting

23 votes
25 up votes
2 down votes
Active
(@tdelia)

Education

Change the high school graduation requirements

Special needs students need community based instruction while in high school. They need jobs and job training, recreation and leisure experiences, home living experiences, community participation and post secondary training/learning. They cannot learn this while sitting in a classroom. When I taught for 32 years I used the Enderle-Severson Transition Rating Scale for all of my students as a guide to make sure they were... View full idea »

Voting

76 votes
80 up votes
4 down votes
Active
(@catohare)

Education

Support Services in College

We need to begin a disability initiative modeled after the University of Illinois in Champaign-Urbana. This university has reached it's goal of creating an all inclusive higher education environment (regardless of the level of your disability-they TRULY have thought of everything). The option of attending a university like the U of I should be available in this country for every student that desires to live independently... View full idea »

Voting

64 votes
65 up votes
1 down votes
Active
(@cjohnson)

Employment

Self-Employment IS an option

Self-employment for individuals with disabilities has fast become a recognized option. Could two year colleges perhaps offer a course of study, coupled with mentoring, and networking opportunities to spur this employment option that leads to student employment success? Are there incentives for two year colleges to join the cause!

Voting

41 votes
42 up votes
1 down votes
Active
(@catohare)

Social Security

Support the family caregivers

It is not an uncommon situation for a parent of a child with a serious and debilitating disability to leave their job to take care of their child in the home. Families in this situation should receive some type of benefit or deduction and receive financial credit for the lost income.

Voting

53 votes
56 up votes
3 down votes
Active