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Health and Human Services

COLLECT DATA:Young Adults with Chronic Conditions & Disabilities

The National Survey of Children with Special Health Care Needs (CSHCN) collects data on children up to 17 years of age. Since this survey shows that prevalence increases with age, it is important to know what happens to young adults aged 18-30 years. Young adults are a particularly vulnerable segment, and it is critical to know what happens to them as they venture out on their own. Some of the issuese that beg to be... View full idea »

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Health and Human Services

Lack of Federal Oversight for Young Adults.

Who looks after Children with Special Health Care Needs when they turn 18?

The Office of Children with Special Health Care Needs (CSCHN), MCHB, HRSA, has an excellent agenda for CSHCN that includes health care transition (the move from pediatric- to adult-focused health care and parent- to self/shared-health management). This office only has authority for children and adolescents.

Offices that address chronic... View full idea »

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Health and Human Services

Medicare and Medicaid for life

I think the best disincentive for working is the notion of needing to pay for their health services and yet make enough money to not be destitute. For those with physical disabilities and require 24/7 care, it is literally impossible to find a job without excellent health insurance that allows the person to work/support themselves financially. For those like me with expensive conditions (ASD, bad back/neck, allergies... View full idea »

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Education

Screen Readers Valid for Reading Comprehension on All Measures.

SWD can use technology that allows them to fully function with reading demands in class, college and the workforce, yet this technology invalidates reading comprehension scores on tests, holding many bright minds to their disability. Because of of this they are excluded from educational opportunities provided to their peers and their self determination stifled. How can education policy keep up with technology, recognizing... View full idea »

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Education

Health as Transition Topic on IEP

Many youth with disabilities also face health issues/chronic health conditions. Health care transition from the pediatric to the adult health care system is often not addressed with youth and their families. Addressing health, health care transition and health care self-management as part of the transition IEP would be very helpful for youth with health issues. Only someone who is healthy/can manage his/her health condition... View full idea »

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Education

Accountability For Individual Members of IEP Team

A last section of the IEP could simply be one sentence per member of the IEP team (student, parent, regular ed teacher, special ed teacher, LEA, therapist, etc.) that summarizes what that team member will be held accountable for over the life of the IEP.

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Education

College Level Services

Yes, many of our kids DO go to college and are successful in that environment. But it's not because they've been provided any services. Most universities and post-secondary education is SERIOUSLY lacking in the services departments. Any post-secondary institution that accepts government money of any kind needs to have available services for all, not just hard copies of notes and extended test time for those with learning... View full idea »

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73 votes
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Education

Community College Post Secondary Programs

Community Colleges need to expand and develope two year programs for students with disabilities that focus on a skill based cirriculum: life skills for independent living, job preparation, and include options for training for specific types of jobs. Many post secondary programs are expensive. Community colleges allow for affordable programs and greater accessiblity. It also provides youth with a college experience.

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Education

Include Transition Data in RSA 911

Include mandatory transition-related codes in the Vocational Rehabilitation (VR) RSA 911 system for youth referrals: source of referral (name school), expected/actual date of graduation/program completion, coord. of IEP Measurable Post-Secondary Goal with VR Employment Goal, Transition Employment Services (i.e., after school employment, summer employment, job coaching).

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28 votes
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Education

Invest in Interest-based University and College Programs

Colleges and Universities have historically had restrictive access fo people with disabilities. Yet, there would be tremendous benefit for providing routes of access for both the person with the disability and the typical college student and faculty person.

The Hussman Center for Adults with Autism at Towson University is a model program that provides access for individuals with disabilities to enrichment, vocational,... View full idea »

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21 votes
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Education

Entry Criteria should have mechanisms to include SWD

STEM and Magnet programs should have mechanisms to insure that disabled groups are equally included in diverse programming. If they cannot do this STEM and Magnets should be lottery only. Unbalanced profiles of SWD do not fit well with competitive entry matrix criteria. Students may excel in Math or Science while other disability related skills will flatten the SWD profile barring their entry. One of the many reasons... View full idea »

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Education

Incentive Ideas

While we shouldn't have to pat our district personnel on the head and say "Good dog!" when they provide our children the APPROPRIATE part of FAPE, it might be nice to give them incentive to do the right thing. Whether this incentive is positive or negative depends on them. But more and more districts are resisting providing the appropriate services, especially to children of the poor and/or uneducated. There are too... View full idea »

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Education

Inspiration Through Work Experiences

Experience leads to inspiration, inspiration leads to motivation, and motivation leads to success. While the IEP provides a platform for students to express their long-term academic and career interests, the IEP alone cannot provide students with the exposure they need to fully understand the broad range of exciting opportunities available in the world. EVERY student should be excited about their future. Let's get the... View full idea »

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43 votes
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Education

Change the high school graduation requirements

Special needs students need community based instruction while in high school. They need jobs and job training, recreation and leisure experiences, home living experiences, community participation and post secondary training/learning. They cannot learn this while sitting in a classroom. When I taught for 32 years I used the Enderle-Severson Transition Rating Scale for all of my students as a guide to make sure they were... View full idea »

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76 votes
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Education

Transition and self-advocacy

When I graduated high school and attended my intake meeting with the university's Disability Resource Center, I knew very little about my rights and my need to start advocating for myself. Many students leaving high school and moving towards higher education do not have the knowledge and skills necessary to advocate. There is a lot of knowledge that goes into this. Students need to have a strong understanding of their... View full idea »

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