(@jglifx) kudos icon +

Health and Human Services

self determined lives via self directed supports

it is vital that grads with IDD and their families are able to reach out to those still in transition and share the stories of their experiences "outside the box" in the real community via PCP and Circles of Support and the possibilities that exist outside the realm of traditional segregated agency centered services----the group home/dayhab/sheltered workshop track

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(@deb.golding) kudos icon +

Health and Human Services

Dead Malls into centers for youth development

Collaborate for Youth! There are Dead Malls across the country. In our small state, right in the center, perfectly accessible is a giant Dead Mall. Currently a few large chains stores have attached themselves to the outside but do not provide access into empty the mall. I've heard some investor has bought it and plans on bringing in more retail chains. INSTEAD, these massive retail corporations should vacate the mall... View full idea »

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3 votes
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(@ayerl0) kudos icon +

Health and Human Services

Mandated training

More often than not, staff from Departments of Education, VR, Health etc who are part of the transition process have little or no knowledge of low incidence disabilities. I believe that each year a two-day training should occur -- to include relevant staff from each collaborating department. Trainings should not be too difficult to organize since every state has federal projects that have training as a focus -- e.g.,... View full idea »

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5 votes
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(@bookwormone) kudos icon +

Health and Human Services

Let Parents Control Housing Placements

Currently in our state, an adult child with a disability will only be placed in a group home when the parents declare an emergency situation. Then, the individual will be taken to any place there is a vacant room. There is no transition time and the resident is placed in a home where he/she knows no one and no one knows him/her. This has led to a slew of placements which involve much older roommates and a lot of behavioral... View full idea »

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4 votes
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(@shariscasa) kudos icon +

Health and Human Services

Families with Multiple Disabled Members

All 4 people in our family are on SSI Disability. I want to provide life long housing for my children. I want to purchase a home with enough property to set up an in-law/visitors cottage to teach my boys how to live with a roommate and/or on their own but I have nothing toward a down payment because if my financial resources increase then our SSI stops, I can't save anything. The current Rural Development Program is too... View full idea »

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4 votes
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(@santamanwalk) kudos icon +

Health and Human Services

obtaining medical practitioners

New York State Department of Health and its agencies continue to claim to have no knowledge whatsoever of any neurologists, physiatrists, occupational therapists, physical therapists and/or speech therapists anywhere in the world, and direct parents and guardians of the disabled that the parents/guardians must seek out any of these which the parents/guardians desire. Also, the NYSDOH and associated agencies continually... View full idea »

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(@ayerl0) kudos icon +

Health and Human Services

Person Centered Planning begins at the beginning

As the title says -- this process should begin for each child when they are young -- and DEVELOP as they get to transition age. The plan will then make more sense since it has evolved rather than just been a "transition planning" outcome. It will result in improved results for the child, the team(s) working with the child -- and the families.

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3 votes
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(@sandra.beckley) kudos icon +

Health and Human Services

PROMISE

Please be aware of new PROMISE project by the Dept of Education. Pilot was on Federal Register as of May 21, 2013. Many of these ideas can be used in this grants. This is for 14-17 year old youth with disabilities.
The notice can be reviewed at the following Federal Register Web site:
http://www.gpo.gov/fdsys/pkg/FR-2013-05-21/pdf/2013-12083.pdf
This is for the whole family and across multiple programs for... View full idea »

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(@jlmcnayr) kudos icon +

Health and Human Services

Falling through the Cracks

I think it is important to overhaul how eligibility for adult services is determined. Having worked in education as a special education teacher and having worked in the VR system as a Voc. Rehab. Counselor, I have seen first hand how many individuals with disabilities fall through the cracks for services. In the VR system, some individuals are too severe to benefit from services. In the mental health system, these... View full idea »

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21 votes
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(@teridoolittle) kudos icon +

Health and Human Services

Reimburse health care providers for YSHCN Transition Planning

Transition has many meanings in health care. For most physicians, "transition" planning means transition of medical care from one doctor to another. There is provision for transition-of-care services to be reimbursed. But transition planning for YSHCN goes beyond transition-of-care; there is a patient education and counseling component at several levels, from physicians, physician assistants, nurse practitioners, speech... View full idea »

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5 votes
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(@cschlechty) kudos icon +

Health and Human Services

Separate services for youth with disabilities from aging adults

Most of the services today are geared toward adults that has acquired a disability later in life. Systems really aren't in place to support youth adequately. I was ineligible for SSI until I turned 18, but was told if I had any cognitive issue, I would have been able to get PCAs. The application and evaluation for getting approved were all geared toward the elderly.

The priorities are clearly different for youth.... View full idea »

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(@mary.rhodes) kudos icon +

Health and Human Services

Local Information Clearinghouses

88% of those with DD live at home according to a recent study. They and their families are ill-equipped to navigate the maze of programs services and opportunities that are available locally. Many are poor, ill informed, overwhelmed and/or isolated. The internet provides a way to develop “hyperlocal” information clearinghouses that serve localities and could be built into a national network. These could deliver news... View full idea »

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15 votes
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(@aminey) kudos icon +

Health and Human Services

Health and Education Transition collaborating - EdHCT

Special educators focus on education transition, and healthcare providers work on healthcare transition however the word “transition” means something different in each field. Youth with Invisible Chronic Illness (ICI) and their families need to navigate these two fields that often do not work together to support these students. Healthcare and educational interests are both critical to support positive adult outcomes.... View full idea »

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(@efurgang) kudos icon +

Health and Human Services

Identity as a Factor of the Transition Process

Identity is a crucial component that must be considered in the transition process, whether to employment or continued education. Having recently completed my dissertation on the identity and engagement of college students with intellectual and developmental disabilities, I would love to see a collaboration of stakeholders to further this discussion. How someone views him/herself as a student, an employee, a community... View full idea »

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(@cpumerantz) kudos icon +

Health and Human Services

Occupational Therapy's Role in Transitions

Occupational therapy practitioners promote participation in school routines such as recess, cafeteria, and classroom activities. They support development of skills necessary for successful transitions towards independent living, community integration, employment, and/or college. Practitioners are experts in activity and environmental analysis and modification to establish the "just right fit," so students can achieve... View full idea »

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