Social Security

Social Security

Flexibility

I still think there needs to be more flexibility in transitioning from benefits to work and back again if necessary. Especially for more severely physically disabled folk, one's ability to accomplish tasks can be fluid. One can be able to work for years at something until their disability changes and that task becomes more difficult or impossible. It would be great if benefits counselors or advocates had more ability ...View full idea »

Submitted by (@xangoexu)

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Social Security

What is disability? We need a uniform definition.

There are too many definitions of disability, as previously noted; they conflate eligibility requirements with support needs, with financial factors complicating disability eligibility. It's a mess. Right now, "disability" (as an eligibility requirement) is defined as the inability to achieve substantial gainful activity (SGA), rather than being defined as the presence of an impairment that would be regarded as a disability ...View full idea »

Submitted by (@teridoolittle)

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Social Security

Awareness of the "Section 301" exception

Many SSA employees, teachers, parents, guardians, and recipients do not know that Social Security benefits may continue despite medical improvement when one is participating in a vocational rehabilitation program (VR) or American Indian 121 project. This is the "Section 301" exception. At an age 18 redetermination, students may lose SSI benefits even though they are participating in an IEP or IPE and making progress ...View full idea »

Submitted by (@eichstadtg)

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Social Security

Benefits Counseling

Every youth and their family needs to receive benefits counseling prior to exiting high school so that a clear and ACCURATE understanding of how wages/self employment may or may not affect benefits is understood.

Submitted by (@macey0)

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Social Security

in summary

There are some wonderful ideas and excellent feedback from this forum. I would love to hear feedback from the agency partners that are behind this event as to how they plan to implement these ideas and put them into practice! What can we as consumers in need of these changes and support do to encourage these much needed policy changes.

Submitted by (@catohare)

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Social Security

Create incentives for SSI recipients

Create incentives with the expectation of at least partial work for all SSI recipients. I work in the K-12 system and often hear from teens that they aren’t interested in a job since they plan to get SSI and don’t need a job. If individuals had to demonstrate some efforts toward, at least partial employment, it would go a long way toward working with these students and helping them become self-sufficient. Also, ...View full idea »

Submitted by (@vmahaffy)

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Social Security

The right to work and marry

People with disabilities should be able to work without worrying about if they will lose their benefits from the state. And if they absolutely can't work it is not fair that they lose their benefits if their spouse makes more than $2,000. And if spouses are doing the care giving it should be an option to get paid because family members, friends, and significant others get paid for care giving.

Submitted by (@allegra.keys)

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Social Security

Partnership between SSA, VR, Schools, etc.

There has to be a better way to partner between schools, VR, SSA, Workforce, etc. School staff are not all knowledgable about SSA benefits and the benefit to going to work, how living on SSA benefits is essentially living in poverty, and how to move toward going off SSA benefits. There needs to be cross training between staff, early education and mandatory planning meetings with families, and a focus on Employment ...View full idea »

Submitted by (@kosmani)

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Social Security

SSA's Age 18 Redetermination

When a youth has received Social Security benefits as a child they will receive notice on or around their 18th birthday to go through redetermination where they must meet the SSA's adult definition of a disability. To continue with benefits they must prove to SSA that they have a disabling condition that prevents them from earning Substantial Gainful Activity (SGA) and that disabling condition is expected to last a minimum ...View full idea »

Submitted by (@juliab)

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Social Security

Life expectations

I believe we have created a system that is crippling indvduals with disbilities when origianlly it was meant to support people into the workforce. Areas to be addressed,,, 1. Expectation that all young people with a disability will have a working lifestyle after graduation. 2.There will be a safety net for indivdiuals on SS/SSI/SSDI who work for a awhile and lose their job do to layoffs. 3.Families must be educated ...View full idea »

Submitted by (@lburrus)

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Social Security

Social Security eligability transition

If a student is eligible for SS for their disability when they are a child, becoming an adult does not change this disability or its ramifications for the person. When a child with a disability on SS turns 18 they have to reapply for assistance and often times are denied. They then have to go through appeals processes and sometimes get an attorney involved. These children were already determined to have a disability and ...View full idea »

Submitted by (@patsyleec)

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Social Security

SSI and private insurance

I have an idea... for those of us who don't qualify for SSI because we make just a bit to much.( we make 75.00 to much) We also have our insurance through work.

I think that if a family doesn't qualify they shouldn't have to pay a deductible at all for the child/person with a disability. This would help the family who need care not have to worry about dishing out money before a procedure or surgery. just a thought..

Submitted by (@mnappo)

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