Specify Invisible Chronic Conditions in Disability Policies.

Current disability policy and laws, e.g., IDEA and ADA, fail to address the needs of young people with invisible chronic conditions, e.g., diabetes, epilepsy, Crohn’s disease. Chronic conditions are unpredictable; they wax and wane. When young people with invisible conditions feel good, they may not need accommodations, but when they are not well, their accommodations need to kick in immediately. Today’s technology and practices need to optimized for this vulnerable population. Videoconferencing, Skype, tutoring, attendance policies, modified/reduced workload in education, and flex work are a few examples that will enable success in school, college and work. It is important to recognize that adults make these young people feel guilty when they ask for accommodations, i.e., that they do not want to do the work. In turn, this affects their ability to self-advocate. Too many young people with invisible conditions who are capable of higher education and professions are failing to reach their potential.


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Idea No. 383