Campaign: Health and Human Services

NO WAITING FOR SERVICES FOR INDIVIDUALS WITH DISABILITIES

Individual's with disabilities should not be on waiting lists for 8 years before they receive assistance. There should be a NO WAIT IN ANY STATE POLICY for services for individual's with disabilities.

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117 votes
120 up votes
3 down votes
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Campaign: Health and Human Services

Mandate Recreational Therapy in All Schools

Recreational Therapy (RT), although a cost-effective covered service in IEPs, is under utilized in the school system due to ignorance of its scope of practice. RTs are nationally certified/licensed health professionals who provide services aimed at the successful integration of individuals into the community. Because of this ignorance, RT is under prescribed within the school system, schools do not regularly employ RTs, ...View full idea »

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78 votes
79 up votes
1 down votes
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Campaign: Health and Human Services

Personal Care Services

Currently, millions of people with disabilities need personal care services to live independently. Unfortunately, most of the PCA services are linked to Medicaid, and once people with disabilities become employed, they lose access to the assistance that makes it possible for them to dress, bathe, eat, and be part of the community. I propose a personal care assistant program based on physical needs, not income, because ...View full idea »

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62 votes
62 up votes
0 down votes
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Campaign: Health and Human Services

Soft Skills Necessary for Jobs, Relationships

We need resources--e.g., social skills training and support groups-- to help young adults with ASD gain the soft skills that are necessary to getting and keeping jobs, and to developing and maintaining adult relationships outside of work.

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50 votes
50 up votes
0 down votes
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Campaign: Health and Human Services

housing options for students with intellectual disabilities

There are too few options for housing for students with intellectual disabilities. Having access to a variety of options for housing with assistance from government agencies is needed to provide safe and secure housing for our growing population of students graduating from high school with a variety of medical and intellectual disability.

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47 votes
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Campaign: Health and Human Services

Learning to Expertly Navigate "The System"

In a series facilitated by MDA, many transitioning adults observe that a specialized skill set has been required to understand and manage state/federal resource eligibility and adult living; complexities that require a level of savvy above that of their non-disabled peers. Identifying a need for/ opportunity to create formalized training programs to facilitate the development of such specialized skill sets for directing ...View full idea »

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45 votes
47 up votes
2 down votes
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Campaign: Health and Human Services

Maintaining Medical Assistance thru Transition

One of the most aggravating systems to navigate is the application/renewal process for Medical Assistance. When my children moved into their adult years, the amount of hassle and paperwork to keep their Medical Assistance active was overwhelming. There are some disabilities that are simply never going to change. Why then do we have to reapply for Medical Assistance insurance just because they changed in age from ...View full idea »

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45 votes
47 up votes
2 down votes
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Campaign: Health and Human Services

Health care transition essential to school to work success

Just as youth with disabilities need support to successfully move from school to work, health care transition support and coordination to prepare and successfully move from pediatric to adult care is also essential. Without the delivery of health care based transition services, youth or young adults risk "aging out" of their pediatric medical home and either "fall out" of care altogether or depend on crisis oriented ...View full idea »

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41 votes
41 up votes
0 down votes
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Campaign: Health and Human Services

Data sharing across federal agencies

Each federal (and state and county and city) agency across sectors collects its own data on the populations it serves. We need a data platform shared across agencies that serve youth and adults with disabilities to measure quality, track progress, assist with population planning. This will also decrease the redundant paperwork and administrative burden on already burdened families, youth, physicians, teachers, and service ...View full idea »

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39 votes
39 up votes
0 down votes
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Campaign: Health and Human Services

To Subsidize or not Subsidize Autism Therapy Services

One of the challenges I face as an Autism Consultant is getting the Federal Government in understanding that Autism Services should be accessible to all socio- economic and ethnic families. Early intervention and continuity of services is the key for ensuring success for the individual diagnosed with Autism. It is heart wrenching when you sit and listen to many parents crying for help because they cannot afford services ...View full idea »

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36 votes
36 up votes
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Campaign: Health and Human Services

Transition "home" with coordinated services

After reading many of the comments, a common theme seems to be the difficulty that parents and young adults with disabilities have navigating the system and obtaining needed services. It would be ideal to have program that would provide coordinated services for young adults transitioning out of IDEA Part B. The individual with a disability (IWD) would be assigned a service coordinator who would help them understand ...View full idea »

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35 votes
36 up votes
1 down votes
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Campaign: Health and Human Services

Recreational Therapy

Mandate Recreational Therapy in All Schools Recreational Therapy (RT), although a cost-effective covered service in IEPs, is under utilized in the school system due to ignorance of its scope of practice. RTs are nationally certified/licensed health professionals who provide services aimed at the successful integration of individuals into the community. Because of this ignorance, RT is under prescribed within the school ...View full idea »

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34 votes
34 up votes
0 down votes
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