Campaign: Health and Human Services

NO WAITING FOR SERVICES FOR INDIVIDUALS WITH DISABILITIES

Individual's with disabilities should not be on waiting lists for 8 years before they receive assistance. There should be a NO WAIT IN ANY STATE POLICY for services for individual's with disabilities.

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117 votes
120 up votes
3 down votes
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Campaign: Health and Human Services

Funding to people, not agencies

Funding for any type of services intended to serve people with disabilities should be assigned to those people rather than agencies. Individuals and their families can then purchase needed services wherever they choose, making it more likely that agencies will want to make their services attractive to their consumers.

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29 votes
38 up votes
9 down votes
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Campaign: Health and Human Services

Learning to Expertly Navigate "The System"

In a series facilitated by MDA, many transitioning adults observe that a specialized skill set has been required to understand and manage state/federal resource eligibility and adult living; complexities that require a level of savvy above that of their non-disabled peers. Identifying a need for/ opportunity to create formalized training programs to facilitate the development of such specialized skill sets for directing ...View full idea »

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45 votes
47 up votes
2 down votes
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Campaign: Health and Human Services

Individuals w. Dev Dis as Medically Underserved Population

Individuals who have disabilities face many barriers accessing and utilizing health care, while at the same time facing many health issues (for supporting data please review CDC's Disability and Health Data System-BRFSS data www.dhds.cdc.gov). Elevating individuals with developmental disabilities to the status of "medically underserved" would provide more financial resources to address this health disparity/gap.

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26 votes
27 up votes
1 down votes
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Campaign: Health and Human Services

Consumer Directed Care

In states like California, Medicaid consumers who qualify for home-health care hours have the option to receive a monetary allotment from the state to pay their caregivers as they see fit. This should be in every state. I should be able to pay my long-term employees more than my trainees because I value that my long-term employees have stayed with me. I also should be able to give bonuses within my allotment when my ...View full idea »

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27 votes
29 up votes
2 down votes
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Campaign: Health and Human Services

Maintaining Medical Assistance thru Transition

One of the most aggravating systems to navigate is the application/renewal process for Medical Assistance. When my children moved into their adult years, the amount of hassle and paperwork to keep their Medical Assistance active was overwhelming. There are some disabilities that are simply never going to change. Why then do we have to reapply for Medical Assistance insurance just because they changed in age from ...View full idea »

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45 votes
47 up votes
2 down votes
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Campaign: Health and Human Services

Transition "home" with coordinated services

After reading many of the comments, a common theme seems to be the difficulty that parents and young adults with disabilities have navigating the system and obtaining needed services. It would be ideal to have program that would provide coordinated services for young adults transitioning out of IDEA Part B. The individual with a disability (IWD) would be assigned a service coordinator who would help them understand ...View full idea »

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35 votes
36 up votes
1 down votes
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Campaign: Health and Human Services

Sensitivity Training for Healthcare Providers

Another topic sparked this one ... I don't know that we, the disabled population, are so much under served as we are avoiding medical professionals. Too often in my life, doctors have tried to dictate to me how I should live my life, what procedures I should have, what path I should take. They do no often do this with their able-bodied, not chronically ill patients so why do it with me? I am a highly educated woman ...View full idea »

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25 votes
26 up votes
1 down votes
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Campaign: Health and Human Services

"Yelp" for Transition Services

I think that students and families should be able to locate, connect to, and comment on transition programs and services in their communities. I'm imagining a mobile app, much like Yelp, so that people can inform each other and put the word "consumer" in the word "consumer."

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22 votes
24 up votes
2 down votes
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Campaign: Health and Human Services

Institutional bias

It's my understanding that the U.S. spends $53 billion each year on long-term care, but that only 18% of that money is spent on community-based services and support. It seems like that until we begin to shift the institutional bias of our Medicaid and Medicare programs to a more community-based mentality then we will continue to have long waitlists for services and stringent eligibility criteria. We will continue to ...View full idea »

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19 votes
22 up votes
3 down votes
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Campaign: Health and Human Services

Personal Care Services

Currently, millions of people with disabilities need personal care services to live independently. Unfortunately, most of the PCA services are linked to Medicaid, and once people with disabilities become employed, they lose access to the assistance that makes it possible for them to dress, bathe, eat, and be part of the community. I propose a personal care assistant program based on physical needs, not income, because ...View full idea »

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62 votes
62 up votes
0 down votes
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Campaign: Health and Human Services

housing options for students with intellectual disabilities

There are too few options for housing for students with intellectual disabilities. Having access to a variety of options for housing with assistance from government agencies is needed to provide safe and secure housing for our growing population of students graduating from high school with a variety of medical and intellectual disability.

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47 votes
47 up votes
0 down votes
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